May 1, 2010
May is ALS Awareness Month
May is ALS Awareness Month. Probably the only people who are aware of this, though, are people whose lives are already affected by the disease.
ALS is not like other diseases that get lots of publicity (and dollars), because it is relatively rare. Not only that, but most people with ALS don’t live all that long, so it’s hard to maintain a critical mass of support. Everyone has heard of cancer and MS and even Parkinson’s disease. Many people don’t have any idea what ALS is. And yet I can’t think of many other conditions that cause more suffering and anguish.
I try to stay positive. I share my story, not because I want sympathy or pity, but so that others will learn about ALS and support research that will help doctors understand what causes this disease and find a way to help us live longer. I really believe the answer is out there, maybe not too far in the future. It may be too late for people who have ALS today. But the more we raise awareness now, the sooner the breakthrough will come.